Showing posts with label james' issues. Show all posts
Showing posts with label james' issues. Show all posts

Saturday, June 20, 2009

Evaluation Results and Going On From Here

We got the results of James' Psych Eval on Thursday. They basically said what I've been saying all along. It's reassuring to have it there on paper, to know that I'm not just making it all up, to have it "proven" I guess you could say.

The report does lay a lot of light on things. But it also brings doubt and many questions. Going on and doing things as we have been, while in some cases is perfectly OK, but in others it's just not going to work. I have doubts now. The report tells me James has difficulty processing spoken word. We kind of knew that before anyway. So I'm left wondering how much I'm saying is actually getting through to him.

I'm sitting here wondering what it is he can do and what he can't do. How are we, as his parents supposed to help him learn and grow? How does this information change everything that we've been doing up until now?

Some of the big questions Jason had for me are things like "How do you emotionally connect to a child who won't/can't give that connection in return?" "How do you keep reinforcing the positive interactions when those are so far and few between because the child is so angry and negative that all interactions with him take on that light?" I don't have answers to those questions. I don't have answers to my own questions. Things like "How do I help him understand the why of things when he asks when it really seems like it doesn't make a difference to him?" "Why should I bother explaining anything to him when all it boils down to is that he just wants a reason to go against what I've asked or expected him to do/say/behave?"

Jason's parents were here for dinner yesterday. James had it out for Jason all evening. He was full of snide comments and hurtful remarks. My understanding is that James doesn't understand the emotion behind those remarks, just the fact that they get a reaction from Jason. How do we teach a child like this to try for POSITIVE reactions instead of the constant negative ones? How do we teach him that the positive reaction is much better than the negative when all he wants, it seems, is some kind of reaction? Jason told me that he was very embaressed by James' behavior yesterday. James got angry/upset and being told NOT to sit on his grandmother the entire time she was here. He really didn't care WHY he couldn't do it, what mattered is that he couldn't.

James feels very starved for attention, or so it seems. He MUST be involved whenever Jason or I are paying any kind of attention to one of the other kids. He becomes very angry/hurt/discontent when he is told that he is not included in the interaction. He becomes irrational. Telling us that we are mean and horrible and that we hate him and that no one loves or wants him. From what I understand, even though these are very "emotional" responses, they are not fueled by emotions at all, but by the fact that James has learned that statements such as those will receive a reaction from Jason and I.

How do you teach a child who feels he MUST be the center of attention at all times simply because he believes that is how it should be to share his time with his parents with his siblings and to do so without pouting and fights and purposely hurting others? How do you teach a child that he can not take his frustration and anger out on his younger siblings just because they annoy him or are in the way of what it is he desires? How do you help him understand that phrases like "It's good you are punishing Izzy because that means I won't have to reatliate against him" and "I hate Jayden, she is stupid and annoying, and I don't care if I hurt her, she deserves it" are NOT acceptable. It seems that as far as he is concerned, as long as HE feels it's ok, then that is all that matters.

James and Jayden were playing today. I think they were wrestling. James held Jayden down and pinned her arms to her body. He then twisted his hands and her arms to the point that it was VERY painful for Jayden. When Jayden came to tell me that this had happened, her arms were bright red. She also had a couple of newly formed bruises on her arms. I told James that he needed to stand in the corner. I showed him the marks he made. I told him that he could not do that. He knows that, because of CPS coming in and out (again, thanks to James) that while we can "hit" him we can not leave marks. I told him that him leaving a mark on Jayden is like us leaving a mark on him and it is NOT acceptable. I don't feel it made an impression. I think he took the info and let it fall off of him like water drops.

To add insult to injury, Homer doesn't believe that James could be so "messed up". Everything I say needs to be taken with a grain of salt simply because I can not be believed. Why would I make this crap up? Why would I state that things are this difficult if they weren't? Wouldn't it make sense to exult the good over the negative? James is a very smart little boy. His wiring in his brain makes him a very difficult little boy as well. My ex has NO clue about it either. His wife runs a daycare. Apparently, that is his base of expertise. NOT raising James on a day to day basis, but the fact that they handle some "difficult" kids every so often. I gave Homer the name and number of the psychiatrist that did the evaluation. I told him that he can call and get the results. That Homer can talk to the guy and ask any questions he wants. That he can get a copy of the report probably. And yet, I have a feeling that Homer still will not "get" it. Oh well, I'll set Homer aside in my worries. His incompetence is no longer something of my direct concern, thankfully.

The positive to all of this is now we have a definitive answer. It's in black and white. We can apply for SSI for James. We can continue to get services for James that he needs. We can take what we have been given and find the ways to make it work for all of us.

Prayers and blessings everyone. I hope that you are able to take what is going on right now and find the positive in it. After all, without the positive it's just too depressing to worry about.

Tuesday, June 16, 2009

Uh, Happy Birthday Jason, I Think

I know that's a werid title. Jason's birthday was Sunday the 14th. For his birthday he almost got to have twins! Let me go back to the beginning, shall I?

Jason was scheduled in at 8 in the morning on his b-day. What a sucky time to work, on your birthday of all days! I got woken up to James playing video games. When I dozed back off, he asked if he could use the portable dvd player that is actually Katy's and stashed in my room, I said NO. He went in, took that out, and also took out my DS. He couldn't get that to work, or maybe he could, I dunno. He said he couldn't but I have a strong disbelief in anything he says when he's trying to get OUT of trouble. Izzy decided that since we had locked the fridge (a piece of rope and a padlock) he would take EVERYTHING he could out of the back hallway and dump that on the floor instead. UGH!

I dragged James out of bed and had him clean up the back hallway as his punishment. Izzy, I made him stand in time out, get a bath with no toys (*gasp* NOT that, trust me, he wasn't too happy), sit in time out in the office on the stool, no movies, and no snacks. He spent a lot of time sitting in the crib, he found it appealing for some reason and I could keep a better eye on him as he was in the office with me, or upstairs. James was ok with cleaning up the back hallway once he found out that Izzy was being punished too and said "good, now I won't have to retaliate against him". That kind of statement so bothers me coming from that kid!

About 1 in the afternoon, I started having regular contractions. Keep in mind, I won't be 32 weeks until Wed this week, so contractions, regular ones at that, are NOT good. I timed them a while to see if they would go away. I drank a bottle of water. I moved around. All a big fat not working. Great. They were about 5-7 min apart. At 3 I finally decide I have to call the midwife to see if I should go in. That was a big "Yes ma'am, get your butt in here". I tried to call Jack, he was at work. I called Katie Ann. I called Jason at work. Katie was first because she had a lot further to drive, being up at my mom's and all. Jason still made it here before her. Katie got here about 4 and off we went.

They set me up in triage, which is now roomy and nice, especially compared to how they had it set up at the old hospital. I get on the monitors. Damn, regular contractions! Little ones, but they were there. They couldn't get both babies on the monitors so I was sent downstairs for an ultrasound, that Jason unfortunately missed because he was dealing with my ever so impatient sister.

Side note here. How long did she honestly expect it to take us at the hospital? Why is it that we are there an HOUR and she is already calling us and asking when we will be done? Also, why the HELL wasn't she keeping a closer eye on Izzy? When I got home, my house was much more trashed than when I left!

Back to the main story here. The babies were both doing fine. Jack is head down, but he has his back to my cervix. Abbey is curled up inside the U that Jack makes. They were both practicing their breathing, a very good sign for them. She didn't take measurments to determine their size, that wasn't the goal. She measured each ones fluid and took some readings of blood flow through the umbilical cord. She checked Jack's kidneys. They both had a little fluid in each one. One of Jack's kidneys may be bigger than the other. I see a doc for that later today (with today technically being the 16th). The cords are not around the babies' necks.

I get back upstairs and the contractions are BIGGER. Well crap! So it is decided that I get a shot of terbutaline. That is some NASTY stuff. I also get a bag of fluid. And the Doc (who happens to be the same doc I saw in the office last time) ordered steroids for the babies' lung maturity to go a little faster. The terbutaline gave me some AWFUL side effects, but I was told of them. My cervix is way up high and closed tight, both good things. They got the contractions to ease up quite a bit. I was still having them, but they were much less frequent and much more mild. I was ordered not to stray away from my home town (which rearranged a couple of plans for the week) and to drink enough water to drown a fish. I also had to go back on Monday and get the 2nd shot of steroids.

Jason went down stairs at one point to call his sister and let her know to come pick up the kids and to cally my sis and let her know what was going on. She had called my bro and asked him to come over because she was freaking out about needing to leave to go pick up Alex and wah wah wah. In this time frame, James ran away again. I didn't get Katie's side of that until earlier today (today being the 15th, which I am still on). She called the police. And my bro to come look for James. Thankfully he didn't run too far, and he came home on his own. Our family worker happened to be the one on call, so that worked out for us as well.

Jason came up and told me about James and Katie and that whole debacle. At that point, I am huddled up, shivering and freezing, under a blanket (heated) and a sheet. I start having coughing fits because apparently, terbutaline is also a med they give to asthmatics to stop their episodes. Great, just great. I'm having a hard time breathing well and I need to give Jason the number to our therapist because it isn't programmed in to the cell phone, something I apparently need to remedy. The therapist gets called, James comes back, Audra gets there, things get settled down, thankfully.

Audra has willingly taken the kids until Tuesday evening so that I can have a couple of quiet days of rest. I really need them. I am SO exhausted. I could barely sleep last night. I think the worry of the twins coming too soon and the meds and all of that just got to me. I FINALLY went to bed at 6 this morning, but then woke up at 8:30 because I thought I heard someone come in to our house, and it turned out to be our neighbor getting ready to take his boat out ont he lake. Good grief! I laid around in bed most of the day while Jason cleaned. I told him that was my plan and he was very OK with that. He called in to work last night for today. He felt he needed to be home to make sure I was OK.

Speaking of Jason and myself. Sitting there in the L & D Triage gave us some time to talk. I told him that what he had said hurt me so much and why. He told me that the choice of words he had used weren't accurate. We came to a meeting place at least. Things are definately smoothed over. I did ask him to utilize our family therapist and actually TALK to her. He did that today, while the kids weren't home, so he could speak honestly and not worry about little ears overhearing what they shouldn't. We've decided that as a stress reliever, he needs to stop hiding away and do something active. So now I'm on the search for a punching bag, one of those big ones you hang from a rafter. He'll put it in the basement and when things get stressful, go take that frustration and aggrevation out on the bag. It at least seems like a good idea. I have thearpy. He will have a bag. Ironically, in our mismatched male/female roles, that right there is very sterotypical.

Tomorrow (later today technically) I have an ultra sound and an appointment with a Maternal Fetal Medicine doc. It's just a consult. I see a midwife on Friday. I was already going to start having weekly appointments, but I think now it will become guarenteed to be there every week and I'll get Non Stress Tests (NST's) as well as the every other week or so ultrasound. Right now the hope is the babies stick it out for at least 2 weeks, until I hit 34 weeks. The nurse was impressed that I hadn't needed a terbutaline shot before now and the midwife was VERY pleased at the closed cervix. They also did the fetal protien test, the one that tells if you may go in to labor in the next 2 weeks, and that was negative. I kind of figured it would be, with having scraped a very closed cervix and all.

This week is a busy week. Tuesday is the Maternal Med doc. Jason has Tue, Wed, and Fri off, which is nice. Wed I have therapy that morning. Thur morning I am meeting with the doc that did James' psych profile. HOPEFULLY we will get some narrowing down of what is going on with James at that point. On Friday I see the midwife. Jason's folks are coming up for dinner and they had it catered by my sil. Yum, good food that I don't have to cook! We always get together for "our" birthdays. My birthday is Thur. Jason and I are/will be 32 this week.

Because of my "stay close to home" restriction, I can't go get Katy Beth for her 3 week visit. This makes me very sad because I was REALLY looking forward to the time with her. We're going to set it up so that after the babies come and James and Jayden are with Grandma Linda that Katy will come down for a bit. She had said that she wanted to while they were gone. Hopefully her swim and baby sitting classes won't be taking place at the exact same time.

Well, I'm heading off to bed now. I'm VERY sleepy. I'm sleeping back in the bed tonight, and last night. It just makes me feel "safer" I guess. The security of having Jason right there next to me is soothing.

Prayers and blessings everyone. I hope you all have a less chaotic week than mine is shaping up to be!

Saturday, December 13, 2008

It's All Off

It all feels off right now, everything is what I mean. Jason was layed off from work, supposedly temporarily, though they can't say exactly WHEN he'll go back, on Friday the 5th. So he has been home every day since then. That certainly contributes to the feeling of "offness".

This past week I was HORRIDLY sick. I know it's a great excuse, unfortunately, it was TRUE. I HATE being sick. It sucks like nothing else. I have Jason to thank for that sickness as well. I didn't even kiss him and I still got sick! If I would have known I'd get sick anyway, I wouldn't have not kissed him. Yeah yeah, double negative and all that.

I couldn't breathe out of anything but my mouth. My lips got SO chapped from it too. I was sneezing and blowing my nose and just in absolute misery. Blech. I didn't feel like cooking, so the fam survived on either take out or boxed frozen crap. Either way, not what I would prefer to feed them.

I didn't talk to Jenn or Daisy much at all this week. With Jason being home every day, I took advantage and did a lot of sleeping. Oddly, that was a blessing. He does throw off my "usual" computer time during the day however. I'm used to getting up and turning on the comp and messaging on my regular boards and chatting with some friends and then getting to my housework and wrangling of the heathens. However, when I get up now, much too late in the day I might add because Jason is either super nice or just afraid of what might happen if he woke me, Jason is on the comp doing something with one of his games or something like that. Totally throws me off.

I love my husband dearly. I also really like him to have a job. Besides the obvious pay the bills reasons, there is the "get the hell out of my hair 5 days a week" reason. He is going stir crazy being home. He is finding out first hand how hard it is to keep the house clean and get things done with them running around like rabid puppies strung out on meth. Nice image huh?

I digress as usual. Today, he WASHED the bathroom ceiling. He needed something to do while I was ChaChaing and playing a game. He says he's going to paint it with the ceiling paint. I pointed out that I'd like the boys' room to be painted. We'll see how far that suggestion goes.

He's been helping out with craft time and the wrangling of the heathens. I told him to go out earlier today, spend some time alone, away from the house. He put me off. He said he'll go out on Monday. Um, ok. I have therapy at 1:30 so I certainly hope you are either home by then, or you can wait until after I get back.

I got a call on Friday letting me know that James is now in the more intensive therapy program. I know they do other stuff than "just" therapy, however I'm not quite sure WHAT that is yet. We missed his psychiatrist appt at the beginning of the month. I thought that it was on the 4th, turns out it was on the 2nd. Oops. It's now rescheduled for the 29th. I'm going to ask him (the psychiatrist) for a full report on what he believes James' diagnosies are so that I can apply for SSI once again. The first time was an absolute flop. It turns out that at the time I applied, the agency we had receieved services from before was going through a huge staff change and the people who were in charge of our case before left the agency. That means that the forms for the application weren't filled out and turned back in. Well CRAP. That was most of my supporting evidence right there!

It turns out that the closest in depth physio/psycho analysis is about 3 hours from here. It takes place over the period of 3 days. Good lord. I have Larry looking for one closer. When I meet with the young lady on Monday to start the paperwork for the new program, I'll ask her about finding one closer. I don't mind driving an hour or so, but not 3 hours one way over a 3 day period. Ugh!

I'm hoping next week is a little less "off". I'll try to be more faithful to my blog. I still have Thanksgiving pics to post, along with the pumpkin cupcakes from last week. Prayers and blessings everyone. I hope your week is filled with joy and happiness.